- Tuesday 23 September, 2025
Live sessions on Tuesday 23 September 2025 at two different times:
Session 1: 07:00 EDT | 13:00 CEST | 15:00 GST
Session 2: 11:30 EDT | 17:30 CEST | 19:30 GST
Please join this 1.5 hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare diseases. The live virtual meeting is further supplemented with published studies and content.
Register here! https://webapp.spotme.com/login/alexionevents/rareconversations?utm_campaign=rare_conversations_2025&utm_source=QR_Code
